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TOPICOP©: a new scale evaluating topical corticosteroid phobia among atopic dermatitis outpatients and their parents.
BACKGROUND: The fear of using topical corticosteroids, usually called topical corticophobia, is a frequent concern for atopic dermatitis patients and/or their parents. Assessing patients' atopic dermatitis and their parents' topical corticosteroid phobia is an essential step to improving adherence to treatment. Because topical corticophobia appears to be a complex phenomenon, its evaluation by binary responses (yes/no) is too simplistic. Thus, a scale is needed, which is capable of identifying the subtleties of topical corticosteroid phobia. OBJECTIVES: To develop and validate a scale, TOPICOP©, measuring worries and beliefs about topical corticosteroids among atopic dermatitis outpatients and their parents. METHODS: An initial statistical validation of TOPICOP was carried out, collecting qualitative data about patients' topical corticophobia behaviors and beliefs using focus-group methodology. Then, 208 outpatients or their parents from five French centers completed a self-administered questionnaire built from focus-group results. The scale-development process comprised an explanatory principal component analysis, Cronbach's α-coefficients and structural equation modeling. RESULTS: The validated questionnaire comprised 12 items, covering two important dimensions relative to "worries" (6 items) and "beliefs" (6 items). Psychometric properties showed that items had very good communality (>0.60) within their own dimension. The final two-factor solution accounted for 47.3% of the variance. Cronbach's α-coefficients were, respectively, 0.79 and 0.78. Structural equation modeling strongly supported the possibility of calculating a global score. CONCLUSIONS: TOPICOP© is the first scale aimed at assessing topical corticophobia in adult patients and parents of children with eczema. TOPICOP® has excellent psychometric properties and should be easy to use in everyday clinical practice for clinicians and researchers. Further studies are needed to confirm our results and validate TOPICOP© in other cultures.
Publications ayant le même axe principal de recherche (Validation d'échelles)
Perrot B, Anthoine E, Hardouin JB(2018) Validscale : A Stata module to validate measurement scales. Stata Journal, 18(1): 29-50. Barais M, Laporte C, Schuers M, Saint-Lary O, Frappé P, Dibao-Dina C, Darmaun D, Bouchez T, Gelly J(2017) Cross-sectional multicentre study on the cohort of all the French junior lecturers in general practice. Eur J Gen Pract, 24(1): 99-105.
Dany A, Rapin A, Lavallart B, Saoüt V, Reveillère C, Bassez G, Tiffreau V, Péréon Y, Sacconi S, Eymard B, Dramé M, Jolly D, Novella JL, Hardouin JB, Boyer F(2017) The quality of life in genetic neuromuscular disease questionnaire: Rasch validation of the French version.. Muscle Nerve, 56(6): 1085-1091. Fossum P, Le Meur G, Couret C, Pechereau A, Hode F, Albert F, Anthoine E, Lebranchu P(2017) Validation of the French version of the health-related quality of life questionnaire for adult strabismus (AS-20). J Fr Ophtalmol, 40(9): 738-743.
Baayen C, Feuillet F, Clermidi P, Crétolle C, Sarnacki S, Podevin G, Hardouin JB(2017) Validation of the French versions of the Hirschsprung’s disease and Anorectal malformations Quality of Life (HAQL) questionnaires for adolescents and adults. Health and Quality of Life Outcomes, 15: 24.
Boutoleau-Bretonnière C, Evrard C, Hardouin JB, Rocher L, Charriau T, Etcharry-Bouyx F, Auriacombe M, Richard-Mornas A, Lebert F, Pasquier F, Sauvaget A, Bulteau S, Vercelletto M, Derkinderen P, Boutoleau-Bretonnière C, Thomas R(2015) DAPHNE: a new tool for diagnosis of behavioral variant of frontototemporal dementia. Dement Geriatr Cogn Dis Extra, 5(3): 503-516.
Dany A, Barbe C, Morrone I, Wolak A, Reveillère C, Hardouin JB, Dramé M, Sacconi S, Bassez G, Tiffreau V, Richard I, Gallais B, Jolly D, Novella JL, Boyer F(2015) Construction of a Quality of Life Questionnaire for Slowly Progressive Neuromuscular Disease. Quality of Life Research, 24(11): 2615–2623 .
Blanchin M, Dauchy S, Cano A, Brédart A, Aaronson N, Hardouin JB(2015) Validation of the French translation-adaptation of the Impact of Cancer version 2 (IOCv2) questionnaire on a breast cancer survivors population. Health and Quality of Life Outcomes, 13: 110.
Panouillères M, Anota A, Nguyen T, Brédart A, Bosset J, Monnier A, Mercier M, Hardouin JB(2014) Evaluation properties of the French version of the OUT-PATSAT35 satisfaction with care questionnaire according to classical and item response theory analyses. Quality of life Research, 23(7): 2089-2101. Anthoine E, Coutherut J, Delmas C, Moret L(2014) Development and psychometric testing of a scale assessing the sharing of medical information and interprofessional communication: the CSI scale. BMC Health Service Research, 13: 14:126.
Clermidi P, Podevin G, Crétolle C, Sarnacki S, Hardouin JB(2013) The challenge of measuring quality of life for children with Hirschsprung's diseases or anorectal malformations. Journal of Pediatric Surgery, 48(10): 2118-2127.
Publications liées à l'axe principal de recherche (Validation d'échelles)
Challet G, Hardouin JB, Boutin C, Gorwood P, Le Bourvellec JD, Feuillet F, Vénisse JL, Grall-Bronnec M(2014) A shorter and multidimensional version of the Gambling Attitudes and Beliefs and Survey (GABS-23). Journal of Gambling Studies , 30(2): 349-367.
Grall-Bronnec M, Challet G, Sébille V, Gorwood P, Boutin C, Vénisse JL, Hardouin JB(2012) A French adaptation of the Gambling Related Cognitions Scale (GRCS): A useful tool for assessment of irrational thoughts among gamblers. Journal of Gambling Issues, 27: 1-21.
Hardouin JB, Mesbah M(2008) Selection of items fitting a Rasch model. In Mathematical methods for survival analysis, reliability and Quality of life (Eds Huber C., Limnios N., Mesbah M., Nikulin M.): Hermes: Paris. Chapter 17: 255-274..
Hardouin JB(2005) Construction d'échelles d'items unidimensionnelles en qualité de vie. Thèse de doctorat de l'Université René Descartes - Paris 5, 201.
Hardouin JB, Mesbah M(2004) Clustering Binary Variables in Subscales using an Extended Rasch model and Akaike Information Criterion. Communication in Statistics – Theory and Methods, 33(6): 1277-1294.